MMS update – 112 days (3 months, 20 days)

I am honestly surprised that there haven’t been any doctors that have contacted me regarding my blog and the documentary videos and personal and educational information on MMS – Magical Mineral Solution.  I am almost positive that quite a few doctors, as well as suffers and just people wanting to learn more about MMS have surfed my blog.
I did have one guy contact me from Canada – a supposed “patient,” as well as researcher, and offered to send me a personal check for a future phone call from the United States to Canada (his home), but that never happened.  Perhaps he found his answer.  He ended the call with “The one thing I want you to tell me is if it  (the MMS) works.”  I responded with a definite “YES.”

MMS does in fact work, however, I am at a catch-22 as some of you might have read in my previous entries.  The MMS is making it so that my thyroid medication cannot be absorbed.  I am going to have to discontinue treatment.  My next step, depending upon follow-up test results, will be to try to obtain a 4-week (that is the most a regular, ie: NON-LLMD doctor can prescribe) supply of Doxycycline.  I am hoping that the MMS has fought off a considerable number of the lyme bacteria and that the Doxycycline will be effective alternative in resolving the issue. Doxycycline is known to be very dangerous, however, if doses are too high and prescribed for an extended period of time.  I will not lose hope or give up on a successful recovery.

I had my blood drawn today and paid the $200.00 fee for the IGG and IGM Western Blot Lyme Test follow-up test from IGENIX testing labs.  I will be getting my results in 3 weeks and will be eager to see if anything has changed.  Additionally, I will be getting my results for my thyroid panel and screening in 1 week, as well as a CBC (Complete Blood Count) that was ran.  These tests will determine whether MMS has been successful. 

Next steps:  I see the ENT (Ear, Nose, Throat) specialist again on August 5th.  At that point I will likely be referred to a neurologist for the continued facial pain.  I will let everyone know the outcome of my tests, having taken MMS for 112 days aka 3 months 20 days, in 3 weeks.

Stay tuned!

My “lyme” disease/fibromyalgia symptoms – Going on 4 years now.

Emily’s Symptoms:

Note:  All symptoms started Fall 2007.  Most symptoms occur worse on the right lateral part of my body, but all symptoms are unilateral.  I am more inclined to notice symptoms while lying in bed at night and in the morning although they occur during the day and are noticeable, but I am trying to stay busy and function (very difficult).  I often stay home because I am so tired and ache (ear-node/jaw/back/neck/shoulder).

Color Coding:

Red-  Current and unrelenting
Black-  Past or single occurrence (Note:  Possibly latent)

Musculoskeleton System:

-Joint pain in hands/fingers (Occurs in both hands, though slightly more painful on the right side.  Was x-ray for arthritis twice  – both negative).
-Neck/shoulder pain (I will often wake up with EXTREME stiffness in my neck/shoulder area and my neck/shoulders will just randomly burn, especially at night)
-Weakness in limbs (This has occurred twice.  I was so weak I could not even get up, and I thought I might have to be admitted to the ER.  Also at this time I was sweating – DRENCHED profusely)
-Unexplained menstrual pain and irregularity

Neurologic System:

-Tingling in hands/feet/face (I thought maybe I had MS -Multiple Sclerosis because of the random “tingling” – The face has tingling & numbness around lips and jaw bone upon touch and considerably more noticeable in cold weather)
-Dizziness/increased motion sickness (Occurs every few days randomly)
-Headaches/Migraines (I get them a few times a year for a week straight)
-Fainting (I had my blood drawn and entirely blacked out)
-Vertigo (Two single occurrences)

Psychological Well-Being:

-Vivid dreams and nightmares (Fall 2008)
-Increased anxiety
-Difficulty falling asleep and insomnia
-Increased depression

Head, Face, & Neck:

-Lump in throat sensation (It will randomly feel like I have a golf ball or large-size piece of food stuck in my throat)
-Asymmetrical tonsil (On right side of mouth – Dr. states it looks and feels the “size of a grape”)
-Mouth sores (I get little canker sores — clear bubbles in my mouth at random times — usually a single or couple bubbles at once typically behind my front bottom lip)
-Facial flushing (MRI showed inflammation in cheeks)
-Random nose bleeds (Occur twice a year for a week-long stretch and will gush – Last time I went to the ER)
-Extreme dry mouth (Cotton mouth, and it doesn’t matter how much water I drink)

Eyes, Vision:

-“Tired” dry eyes and tear ducts (Eye doctor said that my tear ducts dry up every “2 seconds” instead of “13” seconds.  Additionally, my eyes have lost their “vitality,” ie: vivid/whiteness, and sometimes by the end of the night I look stoned.
-Oversensitivity to light (I now have to wear a hat with a visor all the time and sunglasses)
-Worsened vision (Blurry, worse at night. Developed astigmatism)


-Ear-node pain (Constant dull, aching pain behind ears – random times for intermittent hour-stretches of time – when it is really bad, it extends to the upper jaw, causing me to clench both my teeth/jaws and hands, then I get a headache, and then my upper back and neck start throbbing, knotting, and burning)
-Buzzing in ears (Occurs in 1 ear at a time and is known to occur in both ears, though it happens 75% more of the time in right ear)
-Oversensitivity to sound


-Unusual abdominal cramping (This has happened a couple times. I will get pain in my abdominal region when I am not on my period)

Respiratory/Circulatory System:

-Extreme sensitivity to heat and cold (When others are warm, I am uncomfortably hot and sweaty, and when others are comfortable, I am cold)
-Night sweats (Mostly occurred in 2008, but should not be ruled out because they occurred frequently)
-Cold hands, feet, and nose (Occurs in fall and winter and is out-of-proportion compared to the normal person)
-Hot and cold flashes (Occurs periodically often while laying in bed, or perhaps that’s when I notice it most like many of the other symptoms)

General Well-Being:

-Extreme fatigue (varies day-by-day and can strike out of nowhere)
-Unexplained weight changes (Extreme gain and loss — fluctuates between 118 and 136 lbs and changes in a very short periods of time)
-Enlarged neck/throat (lymph) glands (Especially when I work out, even minimally, ie: lifting dumbbells for a half hour)
-Foul-smelling boogers (Sounds strange, but is definitely something I have noticed since very early on when I became sick).
-Continual, re-occurring, slow healing infections (I get a lot in my fingers)
-Allergies/Sensitivities (I have developed an allergy to dust and developed food sensitivity to blackberries and some soy-made products)
-Random rashes (Allergies?  I have eaten the foods before and never developed a rash – now I am getting more rashes when I eat things.  The last rash was on my left kneecap, which did not subside with Benedryl “quick strip.”  The rash remained on my leg for 3 solid days and was triangle-shaped).


-Abnormal ANA titer 3x (Negative for rheumatoid factor, ie: scloderma, lupus, arthritis, etc.)
-Hypothyroidism (NOT Hashimoto’s)
-Unexplained hair loss (Every time I take a shower, more hair sheds than necessary)
-Dry hair (feels like straw)
-Brittle nails (they no longer grow)
-Dandruff (I have never had a problem with dandruff until now)

My symptoms have mocked: HIV, MS (Multiple Sclerosis), Carpal Tunnel Syndrome, Arthritis, Meniere’s disease, TMJ, Fibromyalgia, CFS (Chronic Fatigue Syndrome), Mono (Epstein-Barr), Mumps, Babesia, Sjogrens Syndrome, etc.