XMRV, Lyme Disease, and Chronic Fatigue Syndrome – CFS. MMS WILL TREAT.


As everyone may or may not be aware of the fact that I have lyme disease, specifically chronic lyme disease.  I did a posting on this a year or two ago and how I believed lyme to be linked with the “XMRV” virus before researchers even made the connection (my entry dates back, before the research).

I want to get tested for the XMRV virus (it is said to cause lyme disease, fibromylagia, chronic fatigue syndrome – CFS, ms, etc).  It is the root cause of these chronic diseases.  Unfortunately there isn’t a standardized test for XMRV yet, not that the government will pay for anyway.  There is an excellent lab by the Whitmoore association, but the test costs $600.  As I stated, it is not covered under insurance.

I have had a return of lyme, or “XMRV” symptoms since I stopped taking the MMS… the MMS was the only “drug” (all natural) that seemed to keep my CFS/lyme/XMRV under control… I am going to once again resume taking it, every single day for 5-8 hours per day.  I also would like to get my follow-up lyme test that I have been talking about, but I cannot afford that, either, which is also out-of-pocket, $200.00, tests #188 and 189.

A lot is going on in my life right now, and the health issues are once again surfacing.  My most recent blood test, from 6/11/12 states:

Hematocrit 47.0 H
MCHC 31.7 L
MPV 10.8 H
Neutrophils 40 L
Lymphocytes 51 H
Thyroid TSH .05 L

My results are once again, since I have stopped taking MMS, out-of-whack.

Anyone who would like to connect with me is welcome to send me a Facebook message.  Search for “Emily Anne Cox,” or emilyacox@aol.com.  I won’t approve your friend-request without a personal message.  I also have a youtube series “MMS- Magical Mineral Solution.”  My username is Not2bforgot10

I look forward to hearing from you!

I will continue to advocate for my health and learn more about my condition and ways to improve my health.  I will be resuming my MMS – Magical Mineral Solution A.K.A. “Water purification drops” to treat my lyme/fibro/XMRV.

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MMS Update – 94 Days (3 months, 2 days) – Thyroid medication conflicts!


I am still taking the MMS every day, but for the past 14 days or so I have been taking about about 5 drops versus the recommended 8 (1 drop per hour, working your way up to 3 per hour).  The reason for this: Concern.  Three things have been happening:

My thyroid scores (which have been normal since I’ve been taking Synthroid to stimulate thyroid hormone) have gone back to hypothyroid, making me wonder whether the MMS may be effecting the adsorption of the medication; two, I have been very bloated, retaining I would assume water and salt, which I believe to be from the MMS, which is primarily salt, and three, I have been super tired and sluggish – another symptom of hypothyroid.

My thyroid, with the thyroid replacement hormone, was functioning fine before I started taking MMS.  Since taking MMS, the symptoms of hypothyroidism have come back, making me miserable – ie, huge bloating (most noticeable in stomach, then face, then fingers – making me look heavier than I am), fatigue/sluggish, etc.

It’s a paradox however because the MMS seems to be working to kill off many of my other symptoms, including:

-Hot and cold flashes (Occurs periodically often while laying in bed, or perhaps that’s when I notice it most like many of the other symptoms)
-Extreme dry mouth (Cotton mouth, and it doesn’t matter how much water I drink)
-Lump in throat sensation (It will randomly feel like I have a golf ball or large-size piece of food stuck in my throat)
-Mouth sores (I get little canker sores — clear bubbles in my mouth at random times — usually a single or couple bubbles at once typically behind my front bottom lip)
-Neck/shoulder pain (I will often wake up with EXTREME stiffness in my neck/shoulder area and my neck/shoulders will just randomly burn, especially at night)
-Enlarged neck/throat (lymph) glands (Especially when I work out, even minimally, ie: lifting dumbbells for a half hour)
-Tingling in hands/feet/face (I thought maybe I had MS -Multiple Sclerosis because of the random “tingling”)
-Foul-smelling boogers (Sounds strange, but is definitely something I have noticed since very early on when I became sick).
-Continual, re-occurring, slow healing infections (I get a lot in my fingers)

Since taking MMS, the symptoms listed above have gone from occurring frequently to rarely.  I will still keep my eye open on their occurrence and frequency.

I am torn at the moment in terms of which action to take, ie: continue taking MMS and continue to getting more bloated (It’s making me look 15 pounds heavier than I am) and allow it to effect my thyroid to where I am exhausted every day, or not take it and run the risk of all my symptoms returning and my lyme bacteria forming “cysts” (right now they should be in the non-cyst form because I have been “aiming ‘bullets'” at them so-to-speak with the MMS, and I had not taken any other medication before to try and fight off the infection, so they received a straight shot of MMS, which I have continually been pumping into my body now for the past 3 months.

I do not want to stop taking it and make a mistake, but the effecting my thyroid absorption is very problematic and all of the symptoms that go along with that alone!  I almost feel like I am stuck in a catch-22 – like I either have to have hypothyroidism (which is bad – many of my symptoms alone are related to hypothyroidism by itself) or have lyme disease, which is even worse.  So basically I feel like I need to rid my lyme (most importantly) but in the meantime I am struggling with hypothyroidism because the MMS appears to be messing the absorption up!

With that being said, I feel like I cannot win… I wish there was something out there just as powerful as MMS that did not conflict with my thyroid medication… even if I knew of something though, I have already started the MMS, and I trust that it’s working so I don’t think I would want to take it.  Stuck!

Emily’s Symptoms:

Current/Unresolved Issues:

-Ear-node pain (Constant dull, aching pain behind ears – random times for intermittent hour-stretches of time – when it is really bad, it extends to the upper jaw, causing me to clench both my teeth/jaws and hands, then I get a headache, and then my upper back and neck start throbbing, knotting, and burning)
-Buzzing in ears (Occurs in 1 ear at a time and is known to occur in both ears, though it happens 75% more of the time in right ear)
-Asymmetrical tonsil (On right side of mouth – Dr. states it looks and feels the “size of a grape”)
-Joint pain in hands/fingers (Occurs in both hands, though slightly more painful on the right side.  Was x-ray for arthritis twice  – both negative).
-“Tired,” dry eyes and tear ducts daily (Eye doctor said that my tear ducts dry up every “2 seconds” instead of “13” seconds.  Additionally, my eyes have lost their “vitality,” ie: vivid/whiteness, and sometimes by the end of the night I look stoned when I am not even around smoke or anything to irritate my eyes.  This also effects my ability to ride a bicycle because of the dry air)
-Extreme fatigue (varies day-by-day and can strike out of nowhere)
-Abnormal ANA titer 3x (Negative for rheumatoid factor, ie: scloderma, lupus, arthritis, etc.)
-Hypothyroidism (NOT Hashimoto’s)
-Dizziness/increased motion sickness (Occurs every few days randomly)
-Extreme sensitivity to heat and cold (When others are warm, I am uncomfortably hot and sweaty, and when others are comfortable, I am cold)
-Unexplained hair loss (Every time I take a shower, more hair sheds than necessary)
-Dry hair (feels like straw)
-Brittle nails (they no longer grow)
-Oversensitivity to light (I now have to wear a hat with a visor all the time and sunglasses)
-Facial flushing (MRI showed inflammation in cheeks)
-Unexplained weight changes (Extreme gain and loss — fluctuates between 118 and 136 lbs and changes in a very short periods of time)

Note:  All symptoms started Fall 2007.  Most symptoms occur worse on the right lateral part of my body, but all symptoms are unilateral.  I am more inclined to notice symptoms while laying in bed at night and in the morning although they occur during the day and are noticeable, but I am trying to stay busy and function (very difficult).  I often stay home because I am so tired and ache (ear-node/jaw/back/neck/shoulder).

Recent Past (Latent?):

-Hot and cold flashes (Occurs periodically often while laying in bed, or perhaps that’s when I notice it most like many of the other symptoms)
-Extreme dry mouth (Cotton mouth, and it doesn’t matter how much water I drink)
-Lump in throat sensation (It will randomly feel like I have a golf ball or large-size piece of food stuck in my throat)
-Mouth sores (I get little canker sores — clear bubbles in my mouth at random times — usually a single or couple bubbles at once typically behind my front bottom lip)
-Headaches/Migraines (I get them a few times a year for a week straight – Note:  At a separate time when I get the nosebleeds)
-Neck/shoulder pain (I will often wake up with EXTREME stiffness in my neck/shoulder area and my neck/shoulders will just randomly burn, especially at night)
-Enlarged neck/throat (lymph) glands (Especially when I work out, even minimally, ie: lifting dumbbells for a half hour)
-Tingling in hands/feet/face (I thought maybe I had MS -Multiple Sclerosis because of the random “tingling”)
-Foul-smelling boogers (Sounds strange, but is definitely something I have noticed since very early on when I became sick).
-Continual, re-occurring, slow healing infections (I get a lot in my fingers)
-Night sweats (Mostly occurred in 2008, but should not be ruled out because they occurred frequently)
-Cold hands, feet, and nose (Occurs in fall and winter and is out-of-proportion compared to every person in the room)

-Random nose bleeds (Occur twice a year for a week-long stretch and will gush – Last time I went to the ER)
-Vision difficulties (Worsened, blurry far away vision – worse at night; developed a slight astigmatism)
-Increased anxiety
-Increased panic in crowded places
-Difficulty falling asleep and insomnia
-Increasing depression
-Vivid dreams and nightmares
-Allergies/Sensitivities (I have developed an allergy to dust and developed food sensitivity to blackberries and some soy-made products)
-Random rashes (Allergies?  I have eaten the foods before and never developed a rash – now I am getting more rashes when I eat things.  The last rash was on my left kneecap, which did not subside with Benedryl “quick strip.”  The rash remained on my leg for 3 solid days and was triangle-shaped).
-Weakness in limbs (This has occurred twice.  I was so weak I could not even get up, and I thought I might have to be admitted to the ER.  Also at this time I was sweating – DRENCHED profusely)
-Fainting (I had my blood drawn and entirely blacked out)
-Dandruff (I have never had dandruff my entire life)
-Unexplained menstrual pain and irregularity
-Unusual abdominal cramping (This has happened a couple times. I will get pain in my abdominal region when I am not on my period)

June 19th, 2011. MMS Update – 90 days.


-Need to get back to structure so that I can continue to take MMS consistently
-MMS taste still awful!
-I take it with water for effectiveness
-Ear-node pain the most pressing symptom (MRI approval pending)
-Boogers no longer smell; less finger and finger nail infections (MMS is definitely working here)

Bloating has occurred because stomach looks fat yet my weight is 121-122 lbs!  MMS causing possible water retention?  (Making me not want to use it) – Going to try doing some sit ups and seeing if it helps…

Over all, seems to be working!

March 13th, 2011. Exhausted.


I am tired and exhausted and just want to sleep.  Erin and I were going to go to a coffee shop tonight, and I am too pooped.  Speaking of “coffee shops,” I want to explore other coffee shops in the area, as I am getting tired of the three that I’ve been to – Chapter House, Bean Cafe, and Starbucks.  I am even tired of Borders which is forever away and full of a bunch of homeless people and PC-users.

I am going to look up coffee shops here soon.  There has to be an intimate one in the area.  Chapter House is okay, but it’s crowded and modern and doesn’t really have the “bohemian” feel I am looking for.  “Bohemian” may not even be the word… it’s just too modern and too crowded and you get a lot of college students.  There are however plenty of mac users, which is good, but it’s all young college folks.

I miss the coffee shops in Burlington which are very down-to-earth, artsy, and intellectual.  I miss that feel.  They would have real local trees as their coffee tables and plants all around.  They would often have live music…. there was a very authentic feel.  I miss that… speaking of “Burlington,” I was going through my stuff today, putting stuff away, and I found the popular, tourist, cartoon-style map of Burlington from when we went on our trip a couple of weeks ago.  I was tempted to cut it out and put it on the wall but didn’t want anymore clutter on the wall.  I then thought of another idea:  Framing it!

I thought to myself, “I need to feel like I’m at home when I’m in recovery,” and so it occurred to me that I could frame it.  I haven’t framed it yet, but it’s just a passing thought.  I probably would have by now, but I am exhausted.  This is part of being ill; I am always tired.  Granted, I did not get proper sleep last night, which complicates matters, but over all, I am not as energetic as I would like to be.  Aside from lacking the energy, I am often in excruciating pain.  I always have pain behind my ears… where the bone and jaw meet.  It’s this dull, aching pain constantly… it often hurts so bad that I clench, both my hands and jaw, which then causes me a headache and eventually a migraine.

The ear/jaw bone pain is always there.  2 years ago I thought that by removing my wisdom teeth the pain would be eradicated but it didn’t make a difference; it remains.  This pain started when I was in a very stressful, abusive relationship back in the fall of 2007.  It has come and gone, but now it is pretty steady.  I want to put a hot packet on it constantly to soothe it, but it only works so well.

I am also super duper sensitive to the heat and cold and have major heat and cold intolerance.  When most people are wearing sweatshirts I am bundled up in a winter jacket, gloves, and a hat.  When people are warm, I am extremely hot and need the AC.  My eyes are also slightly yellow and “sick” looking — they have been this way since fall 2008 when I first became sick.  I get fevers, the sweats, tingling in my hands, face, and feet.  I am miserable.  I have increased anxiety, depression, insomnia…

My mouth is always dry like cotton mouth, and it doesn’t matter how much water I drink; it won’t quell my dry mouth.  I am constantly getting infections… especially in my fingers and nose.  I am sick, and this lyme bacteria is killing me.  The list goes on and is actually quite detailed.  I have been tracking my symptoms steadily for 3-months now using a tracker.  Granted, if I wanted to, I could go back through all of my old medical notes, but I barely have the energy to do that.

I want to get better, to feel better, and to be revitalized again.  I want my health back!

XMRV virus — Common link? (Suspected this 1 year ago – preliminary research).


At first I noticed there was a positive link for XMRV in patients with CFS
Then, after having been diagnosed with LYME disease, I wondered if there is a positive link for XMRV with lyme patients.  One statistic from a personal message board stated that approximately “40% of XMRV suffers have lyme disease.”

I originally, shortly (within a few weeks) before suspecting I had lyme disease suspected I have CFS (Chronic Fatigue Syndrome).

In late July or August of 2010 when I was researching CFS I discovered the connection between XMRV and CFS.

Now that I am diagnosed with Chronic Lyme Disease and still fit all of the diagnostic criteria for CFS, I am wondering if I might be carrying the XMRV virus.  I believe that studies should be conducted on lyme individuals confirming and measuring the percentage of those infected with the XMRV virus and additionally, those with XMRV tested through IGENIX –the top lab for lyme disease.

In addition to my strongly-held belief of all lyme patients needing to get tested for the XMRV virus and the XMRV virus folks getting tested for lyme (via IGENIX), I am wondering if perhaps (this is my hypothesis) many lyme patients are not recovering and/or are having relapses because their “lyme” is being treated and not their XMRV.

I strongly believe and could write a paper on the notion that XMRV is responsible for many (percentage I am not sure) lyme disease suffrage.  Additionally, is there a drug that will treat XMRV and/or lyme disease?  XMRV is a retrograde virus, meaning it encodes itself in the DNA:  Could this be the same, or similar to the borrelia spiroc “embedding” themselves in the cells and tissues?  Could the borrelia spiroc carry the XMRV virus?

Addendum:

What are the negative effects of XMRV?
How is XMRV transmitted?  As of right now, I believe that one way it is transmitted is sexually via breast milk, etc., and I have read that there is possible transmission via ticks, mice, etc.  I do NOT believe that XMRV is genetic.  I strongly believe it (one mode anyway) is passed sexually via breast milk and am open to learning about additional ways.

So if one, like myself, believe that XMRV is at the bottom of this then shouldn’t drugs, ie: medications be looked at on how to treat XMRV?  Basically my best route now would be to look for and hope that some of these “lyme” treatments work for XMRV!

Which lyme disease medications have been known or suspected to additionally work to treat XMRV?

I am curious as to whether or not there is a research trial that I can get involved with and be tested on.