At first I noticed there was a positive link for XMRV in patients with CFS
Then, after having been diagnosed with LYME disease, I wondered if there is a positive link for XMRV with lyme patients. One statistic from a personal message board stated that approximately “40% of XMRV suffers have lyme disease.”
I originally, shortly (within a few weeks) before suspecting I had lyme disease suspected I have CFS (Chronic Fatigue Syndrome).
In late July or August of 2010 when I was researching CFS I discovered the connection between XMRV and CFS.
Now that I am diagnosed with Chronic Lyme Disease and still fit all of the diagnostic criteria for CFS, I am wondering if I might be carrying the XMRV virus. I believe that studies should be conducted on lyme individuals confirming and measuring the percentage of those infected with the XMRV virus and additionally, those with XMRV tested through IGENIX –the top lab for lyme disease.
In addition to my strongly-held belief of all lyme patients needing to get tested for the XMRV virus and the XMRV virus folks getting tested for lyme (via IGENIX), I am wondering if perhaps (this is my hypothesis) many lyme patients are not recovering and/or are having relapses because their “lyme” is being treated and not their XMRV.
I strongly believe and could write a paper on the notion that XMRV is responsible for many (percentage I am not sure) lyme disease suffrage. Additionally, is there a drug that will treat XMRV and/or lyme disease? XMRV is a retrograde virus, meaning it encodes itself in the DNA: Could this be the same, or similar to the borrelia spiroc “embedding” themselves in the cells and tissues? Could the borrelia spiroc carry the XMRV virus?
What are the negative effects of XMRV?
How is XMRV transmitted? As of right now, I believe that one way it is transmitted is sexually via breast milk, etc., and I have read that there is possible transmission via ticks, mice, etc. I do NOT believe that XMRV is genetic. I strongly believe it (one mode anyway) is passed sexually via breast milk and am open to learning about additional ways.
So if one, like myself, believe that XMRV is at the bottom of this then shouldn’t drugs, ie: medications be looked at on how to treat XMRV? Basically my best route now would be to look for and hope that some of these “lyme” treatments work for XMRV!
Which lyme disease medications have been known or suspected to additionally work to treat XMRV?
I am curious as to whether or not there is a research trial that I can get involved with and be tested on.